We are a non-profit organization created to raise public awareness of Niemann-Pick disease, provide financial help to families of children with this disease and support research for treatment. We have created an original bracelet design to raise awareness for the disease - click here to learn more about how to donate and receive a bracelet.
The creation of Gabrielle's Gift was inspired by Gabrielle LaVerde, the struggle she and her family faced to get a diagnosis, and their current struggle to find treatment options and live with the disease.

Monday, March 24, 2008

Update from Gabrielle's Gift

The past few weeks have been exciting and busy!

The garage sale at Gabrielle's school was a huge success. Janet Cason, President of Gabrielle's Gift, talked a reporter at the garage sale, and this article was written, and will hopefully be published in some papers: http://www.mytopiacafe.com/sub_detail.html?sub_id=5917

Chris Hempel, a mom of twin girls who have Niemann-Pick Type C, has recently posted a video on her family's website about their daughter's brain scans - the first of their kind in kids with NPC. The video can be found here: http://addiandcassi.com/videos

Lastly, we are amazed at the outpouring of generosity from our community. It seems as if most people that hear the story of Gabrielle's Gift (and Gabrielle) want to help. If you're interested in helping, we could use volunteers to:
  1. Make bracelets
  2. Help with a mail campaign
  3. Build a website (our goal is to move away from a blog within the next 12 months)

If you're able to help with any of these (or have other ideas), send an email to gabriellesgift@yahoo.com
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